FAQ How did you find out you are gluten intolerant?

Since I started posting recipes for gluten free foods, I have had a lot of people ask me how I found out I am gluten intolerant.

It all started a week after my birthday in 2010 when I got my MRT results back. I had already consulted with a GI specialist who wanted to run a test to see if I have Celiac sprue AKA Celiac disease. My test results listed 47 food allergies. Wheat was one of my worst reactions. The dietitian I was very helpful in helping me figure out what I CAN eat, offered a few recipes, helped me find creamer for my coffee (since I already know I am lactose intolerant) and helped me search for breads I can eat too. She was awesome!

Spelt, Kamut, Rye, Oats and Barley were on my lists of non-allergy foods. For the most part, in the beginning I ate a lot of fresh veggies, salads, some fruits and vegetable soups. One day I made a veggie soup with Barley and later that day my stomach hurt a little. That night my abdomen hurt so bad I cried, I became quite bloated and I ended up having horrible diarrhea. I chalked it up to having accidentally adding something to the soup that I am allergic to. I went over all the ingredients and couldn’t find anything. I was stumped and just brushed it off as a stomach bug and went on with life.

For breakfast, I found that oats are very cheap so I started buying some cheap oats and started having the same symptoms. I eventually just quit eating oats and figured I had developed an allergy to them. I sulked for a bit and then remembered that I had made some dessert type thing with a bag of gluten free oat flour and I had no symptoms when I ate them. I also did fine eating the instant oatmeal mixes by Glutenfreeda.

The next trip to Washington to the dietitian went well. I found some spelt bread that was store bought and had nothing I was allergic to in it. I was so excited that I made myself four pizza sandwiches in the early morning hours, crawled into bed for a little sleep and left for home early in the morning.

By the time I had made it to Snoqualmie Pass, I seriously thought of finding a hospital. My gut hurt so bad it felt like someone was running a grappling hook through my intestines and every joint in my body ached. I felt like crap and I ended up stopping at every rest area and nearly every exit from Bremerton to Spokane. When I finally made it home, I was miserable for a few days and had migraines for the next week. I was sure it was the spelt bread and just threw it away even though it didn’t have anything I was allergic to.

I started thinking about what the GI doctor said about celiac sprue and did a little research on what foods on the list that I can eat have gluten. I crossed them off and vowed never to eat them again. The pain wasn’t worth it!

The next appointment I talked to the dietitian about my symptoms and how the GI specialist wanted to test me for celiac sprue. Living 500 miles away from my doctors, I just didn’t get around to making the appointment because I couldn’t get my dietitian and GI appointments on the same week. She explained that it is very possible that I am gluten intolerant.

She highly suggested the test if I wanted it but said that if I avoid gluten before the test, I could come back with a false negative result. She said if I was going to take the test then to eat something with gluten before hand, I think she said the week before? It might have been a few days. OR I could just avoid all gluten since I am obviously gluten intolerant, at the least. (Note: There is such a thing as non-celiac gluten intolerance). I really wanted the celiac test done but I just couldn’t bring myself to putting myself in intense pain for a test. So, I opted to just avoid gluten.

Eventually, I would love to have the test done and some day I might actually go through it. But for now, I am very content just avoiding gluten products and not torturing myself.

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I am that crazy lady that lives in the bell tower with all the bats. I keep blogging to keep what little sanity I have left.

Posted in FAQ, mailbag
2 comments on “FAQ How did you find out you are gluten intolerant?
  1. hmmmmm very interesting.. I've always wondered.. lol.. Wanted to swing by and thank you soooo much for your thoughtful comment.. and soooooo excited to have another navy wife following.. hehehehehehe (=

  2. No problem! I love supporting other Navy wives! I grew up a navy brat, married navy, had navy babies… I am all Navy! LOL

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